Thursday, February 2, 2017

UPDOSE DAY!


This was our first updose since coming home from Disney so we needed to discuss a few things with the doctor. We told her about the slight roller-coaster ride when he developed that strange fever in Disney (she wasn't the doctor on call when we paged one) and we printed out all the pictures of his different skin reactions while we were over there.
She took a look and said she definitely saw the spots and the rashes and agreed that that 'single spot' on one day was definitely a hive. She asked if it happened soon after dosing and I told her it was hours after dosing. She said as long as it didn't happen within the two hours of dosing we can attribute it to regular allergy reactions and not to the dose, which is a GOOD thing, because if it were attributed to the dose we'd have to slow it down a bit.

We also discussed the possibility of him coming off the Zyrtec but decided against it.  Since he doesn't seem to be having any bad side effects from it she decided to keep him on it to continue his smooth (ish) journey. She said if he were to come off it now he'd have to go right back on it within 4 weeks anyway just before Spring season begins to arrive due to his environmental allergies. So we will keep him on it and hope for a smooth journey onward.

Before dosing him they did the usual- they weighed him, took his temperature, his peak flow, listened to his lungs, looked into his nose and throat and declared him "GOOD TO UPDOSE!"

So updose he did!
down the hatch
Our brave boy is getting up there in the numbers! We are less than a month away (if all goes well) of switching to the next peanut form- from liquid- to powder. They even asked him, "Are you starting to taste less of the koolaid and more of the peanut?" Whoa! Scary but exciting! 

They checked his vitals every twenty minutes. At one point Coby got a little bit itchy and started rubbing at his nose saying he was stuffy so the doctor came in to make sure he was okay. He was! She thinks he tends to get those symptoms each time he up-doses but as long as it doesn't go beyond that he's okay.

At another point during the hour a nurse popped her head in to ask, "Are you doing okay in here?" And Coby exclaims, "I'm doing awesome!" And proceeds to sing: 

After the hour was up the doctor checked him again (for those of you who are keeping count that is six checks within a one hour period!). She said, "You did it again! Passed another updose!" WOOT WOOT!

As his number climbs the increase percentages are getting smaller. (From 5mg to 10mg to 15mg to 20mg and next week will be 25mg) but he is inching closer and closer to that full peanut point. Today he had the equivalent of 1/14th of a single peanut. His starting point was smaller than 1/1,200,000---- how is that even possible?!             
 WAY TO GO COBY!!!!!

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