Thursday, May 18, 2017

UP-DOSE DAY---- PEANUT M AND Ms!!!!

Well it's Thursday again better known as up-dose day.
Honestly though, it didn't feel too much like a real up-dose day. Originally I had thought he'd be at this level LAST week, but the doctors decided (and rightfully so) to slow down a bit. 
If he weren't going to try a different form of peanut today in a way it would have been more of a let down.... but since he was going to give  PEANUT M AND Ms a shot, it was still exciting. 
















The candy world is slowly beginning to open up to our child!

His up-dose to TWO peanuts is equivalent to THREE peanut m & ms--- so bring on the candy!!!! 
"Who can make a sunrise
sprinkle it in dew
Cover it in chocolate
and a miracle or two?
The candy-man can..."

"Wanta change the world?
There's nothing to it
There is no life I know
To compare with
pure imagination.
Living there
You'll be free
If you truly wish to be
If you want to view paradise
Simply look around and view it
Anything you want, do it
Wanta change the world?"
-Willy Wonka

My Coby is changing his world as well as others'. His optimism and 'go get em' attitude is certainly becoming ingrained it to him and without even trying, he is inspiring others.

He is helping children who are nervous to begin their OIT journey by blogging for them (he has several thousand hits on his blog already!) and is helping to ease their nerves.

In  ife outside of OIT, he tries to encourage others too. 
The other day a six year old was struggling with her fidget spinner. Coby told her that while now it may look like he is an expert on his fidget spinner it took a lot of practice. He continued, "Just don't quit! As long as you don't quit, you will get there. Just like me and OIT!"

So anyway we went in for our appointment, and he was ready.... or so I hoped.... 

Good ol 222!
"Dream it. Believe it. Achieve it."


When the doctor came in he asked her if he'd like peanut m & ms. And she simply said, "It's chocolate!"
And Coby said, "But I don't like chocolate!" Sigh. I certainly thought that there was absolutely no way peanut m & ms would be more of a fail than last week's Reese's pieces fiasco. How wrong I was...


The video was stopped suddenly because Coby was seriously gagging and about to vomit. The doctor even put a can in front of him. It was touch and go for a bit there. If he were to throw up, we wouldn't be able to re-dose him since we wouldn't know how much he had successfully eaten... I held his hand and encouraged him. "Just slow down. Take a breath. You got this Coby. You got this."



And he did!!! Thank G-d.
But in case anyone is interested in some freeze-frames...
Here goes nothing....
"I don't know about this..."

Yep, this says it all....
To hurl or not to hurl that is the question...












Once Coby saw the video and the still frames, he was hysterical. At least the kid's got a good sense of humor, though he did inform me that he will NOT be eating peanut m & ms again- and will only be eating actual peanuts from the shell.

I hope I can change his mind. I know he can get used to it and even love it if he just gives it a few more tries. The doctor did say that as long as today went well he will be cleared to eat (the correct amount of) peanut m & ms at home. She also told me if we do use those that I shouldn't make myself crazy trying to determine the exact right size of the peanut m & m, or peanut. I replied, "I guess you are beginning to really know me." She laughed that a lot of moms are very anxious about that and it's not just me. Good to know...

 The hour passed uneventfully with Coby doing homework, playing on his phone, and writing in his journal.
"OIT IS AWESOME BECAUSE..."



















He was so excited to show me one of the pages and asked the doctor to read it as well. She loved it!

Before leaving she told us that we can bring peanut butter next week!!! He will be up-dosing to 3 peanuts. One teaspoon of the flavored peanut butter is equal to four peanuts, so she will work out the math to get it right.

She told us she will check with the head doctor but she is pretty sure that once he reaches 4 peanuts he will be cleared to eat things that are made in the same facility as peanuts! Once he reaches 6 peanuts he'll be cleared to eat things that say 'may contain peanuts'!

HOW IS THIS HAPPENING?

She also told us, "This is it. 8 more up-doses. We are now counting weeks Coby! No more going up by halves anymore- you are on the track to graduation!  The finish line is really in sight!"
She listened to his heart and his breathing and discharged us.

As we were walking out the door Coby said, "Is the door going to lock behind us?" (We are basically the last patient there each time so the door from the outside is already locked.) and I said, "yes".
His reply, "Awwww, then let us not leave. I don't want to go."
Of course I got concerned. "What's the matter? Does something hurt? Are you okay?"
"I'm fine. I just don't want to leave."
"Why?"
"Because I really like this place. I just love it."

Awwww.
But needless to say, we left.

But not for long.
Ironically (for the first time ever) a nurse came running after us and called us back inside.
I had to laugh that Coby was getting his wish and shared what Coby had just said with her. A couple of nurses came up to Coby and told him what an amazing kid he is.
Turns out they had forgotten to do a couple of the post checks so they had to do that. It took all of 10 seconds.
And Coby managed to beat his previous 'score' when it came time to the peak flow, 'scoring' a 240!!!!

You get 'em Cobes!

And so IYH the rest of the night and this entire will continue to go well and next week it's peanut butter time (which he says he is very excited about. Time will tell...)



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