So tomorrow we plan on trekking to the doctor and hope Coby passes his pre-check and is allowed to updose.
After all, it is the winter months, so any type of bad weather here is usually worse up there (near Monsey), so snow can cancel updose appointments too. We already are cancelling the last Thursday this month since we will be away (shhhh don't tell Coby), and tomorrow the weather is supposed to be clear, so here's hoping he is able to updose!
...BUT if there was any doubt in my mind last week about Coby hitting the 1/100th mark of a peanut (the point previous doctors said could close his throat in seconds)---- there is no doubt that tomorrow we will be flying past that point! Last week it MAY have been 1/100th or it may have been 1/120th (or somewhere in between). TOMORROW his dose WILL be a minimum of 1/60th and up to 1/50th!!! That's crazy!!!! Crazy exciting and crazy scary!
Actually if we can updose tomorrow, we'll FINALLY be past 'day one'. Kids who fly through all their day one updoses end that day at 5 milligrams (which is tomorrow's dose). Coby's take home dose was 1/600th which needed to be downdosed back and forth to 1/1,200th.
Aaaack- too much math- I know!
Actually due to OIT, some of Coby's fellow classmates began learning this advanced math- as Coby explained a couple of weeks back, "Today I'm doubling my dose. Right now I'm at 500 micrograms, doubled it is 1000 micrograms which is the same as 1 milligram!" Yowzers! I wouldn't have known this a couple of months ago, let alone over 3 decades ago! And I always had an A in math!
Speaking about classmates and school---- argh. Another incident happened this week. It wasn't his actual teachers messing up this time with Coby catching their mistake moments before he consumed it, but instead an aide in his class. One of his classmates has a shadow and this woman decided to make up little goody bags for Chanukah to give out to the kids--- very sweet. There was a yo-yo, a small container of play-dough.... and chanukah gelt.
It is sooooo easy to get nut free chanukah gelt, but the gelt in each child's 'pekalach' said 'may contain tree nuts and peanuts". She did realize it this time, but gave it out anyway. She took Coby's bag back, opened it and took his gelt away and told the other kids to put it in their backpacks and take it home instead of eating it in school.
What is wrong with this picture?
- Coby was singled out and had a treat taken away from him and excluding him from what others got to have.
-How can an entire class of 8 year olds have enough patience to not eat all that yummy chocolate and wait until they got home hours later?
-Talk about mixed messages. After the last mess up, the school sent out an e mail reminding parents that nothing can be sent to school that is even made in the same facility as nuts--- yet here they have their child bringing home a 'may contain nuts' treat that a 'morah'/the school gave out?! If a Morah can send it in, then of course they should be able to.
-What about those siblings that have nut allergies? The 3rd grader is now bringing home something the school gave out to eat in their own home. What if their home is also nut free due to a sibling with an allergy? What if the parent assumes it is safe since the school gave it out? I for one know never to assume and to always check- but there are plenty of others who may just assume....
So yet another phone call was made to the school. Third one in about two weeks. More apologies given out. Re-educating the teachers, the aides now as well, the shadows, the parents of the child who has this shadow.
And I feel like such a schmuck and nudnick and pain in the ass every time we have to call the school. We were reassured that we did the right thing by calling (obviously) but still makes me feel like "THAT MOM" (insert eye roll here).
Only goal is to keep my kid included, safe and alive.
But I cannot wait til I (basically) don't have to be THAT MOM. While OIT is not a 100% guaranteed cure we would minimally not need to worry about cross contamination, touch or airborne reactions---- in fact some parents in our group said that in just 8 more updoses he may be cleared for cross contamination items!!!!
We are still a minimum of 7 months or so before finishing the program (if we can go every week, no illnesses etc etc etc)---- but progress is being made!!!!
And hey if he is able to updose (successfully- please G-d), then just 67 days since beginning he'd finally be finished with "DAY ONE!" A bit over 2 months to finish that single day---- but hey we didn't even know if we'd get here at all!
So we are excited. We are hopeful. We are scared. We are praying that he is given the green light tomorrow & drives right on through the end of day one successfully!
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