Thursday, December 29, 2016

OH MY GAWDDDDDD---- HE DID IT!!!!!!!!!!!!!!! (mostly!)

Once again when carpool dropped him off he eagerly dashed inside to pee & change & get going to his updose appointment.
On the way there I asked him, "Are you feeling good Coby?" And he responded in a powerful voice, "YEAH, I'M FEELING STRONG!!!!"

That's the right attitude!!!!

Obviously we did not tell Coby the significance of this particular updose but as always he faced it like a champ!
CHAMPION WARRIOR JUST AS MY SHIRT SAYS!

They checked him out and declared him good to updose and so he did.... My brave brave boy.
Actually truth be told, he didn't end up enjoying it as much as he usually does because they are beginning to dilute the peanut protein less and less at this point. So although he went up 150 times, the liquid dropped down to 25% it was. The color, once it was in the syringe, was practically see through instead of deep purple, and he HATED it.

For comparison's sake-  here's the jar of solution from day one compared to our take home jar today--( and when pulled into the syringe it loses even more color.)
October 31st 1st take home jar
Today's take home jar

The hour of observation passed reasonably well. Coby entertained himself on his phone and was even chanting cheers to himself. GO COBY GO COBY GO GO GO COBY! (If he didn't have to keep his voice down, he would have been shouting it from rooftops!)

He also spent a good chunk of time cracking himself up and hysterically laughing. I love that kid's spirit!

After the nurse's final check just before the doctor walked in I noticed some splotches on his face and began to panic a bit. I wasn't sure if my eyes were deceiving me or if something was creeping up now. His cheeks seemed redder and I noticed a couple of white raised spots with red in the center.

The doctor walked in and I showed her what I saw. "Am I seeing things?" I even asked her. She looked and admitted she saw it too and felt his cheeks and was able to feel raised spots, BUT she said she believed it to be a bout of eczema brought on by ingesting his allergen and said she was pretty confident he was okay and declared Coby "passed this updose!" She did say if we were worried we were welcome to hang out a bit. We took our time gathering our things and getting out of the building. We kept stopping to examine his cheeks to the point Coby exclaimed, "STOP LOOKING AT ME SO CURIOUSLY!" LOL.

Since I had Yitz with me I decided to sit in the back with Coby so I could watch him a bit closer. While most reactions happen within that first hour, it's not unheard of for one to occur several hours later, especially in the beginning. We started to pull out of the parking lot as I anxiously watched him scratch at his cheeks, rub his eye and start scratching his belly and hip. We pulled to the side once to unbuckle him and examine his torso more closely.

It was a little red, but he was in such good spirits and otherwise seemed okay so we pulled out and continued home watching him closely.

(I actually learned that skin is the last organ to desensitize meaning the skin remembers the allergy long after the rest of the body 'forgets' it. In fact, someone in my OIT group's daughter is now safely consuming two full cashews each day, but the other day she touched one and her entire hand turned bright red covered in hives. She needed steroid cream to combat that reaction. So her intestines, heart and lungs are able to tolerate consumption, yet her skin cannot tolerate the touch---- yet.)

So yeah, the ending was a little bit scarier than other ones- but HOLY FRIGGIN' COW- MY KID JUST ATE ANYWHERE BETWEEN 1/120th to 1/100th of a peanut--- THE DOSE THAT DOCTOR HAD SAID CAN CLOSE HIS THROAT IN SECONDS. ARE YOU KIDDING ME? DO YOU KNOW HOW HUGE THAT IS????
I just updosed to 2.5 milligrams! (1/120th of a peanut.... or as much as 1/100th!)
SO PROUD OF OUR WARRIOR!!!
WTG COBY!!!!


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