Thursday, July 20, 2017

THE DAY OF TEISHA

How cool is it that Coby up-dosed to 9 peanuts on his 9th (hebrew) birthday.

Teisha Botnim bayom Huledet shehoo ben teisha!


On the way up we passed by a DUNKIN' DONUTS (which is our marker as to where to turn off the highway) and Coby asked, "when I graduate can we go to Dunkin' Donuts?"
"ABSOLUTELY!"

When we got there, I reminded Jessi about the small hive on Sunday post dosing, and showed her a picture of the other small hive that occurred after yesterday's dose. She was still able to feel and see that hive on his cheek at the pre-check, but since it was so small and everything else checked out fine, she said she was still comfortable going up to nine today.

And he took it very seriously! Showing those peanuts who's boss!

We were told that Coby could now actually touch those peanuts and feed it to himself!

BUT

She also said if he were to touch it, while he shouldn't have a contact reaction, if he were to rub his eyes that could still cause a reaction, and so we'd have to still wash him down.

So we passed on him touching them.

We piled up those 9 peanuts into the dosing cup and Coby said, "I don't think my mouth is big enough!"

Yep it is a whole lot of peanuts to consume! We're getting up there!

He asked to divide them up into a cup of 6 and then a cup of 3 so that we did.

The hour passed mostly uneventfully. At the end when he needed to do his peak flow his throat got a bit phlegmy and he couldn't get a full breath out. The nurse had him drink some more water but the peak flow remained at a number a bit smaller than before dosing, but still okay enough.

When Jessi checked him out I asked my questions of the week:

1. When can I stop shelling these peanuts and switch to planters?
Not until the 24 peanut challenge (She said the roasted peanuts in a shell that Coby is dosing with are MORE allergenic than planter's peanuts so we'd have to work out the math to get the proper dose, but meanwhile they want him to really get his body used to the most allergenic form.)

2. How do we dose during summer vacation? In the winter in Disney we dosed in the mornings but it was still chilly when we went out to the Disney parks. In the summer we can dose in the mornings again, but it will be HOT outside and one day we'll be in an amusement park all day. Can heat still be a factor 2 hours post dose?
Heat can cause a delayed reaction. If there is a single day you will be outside in the heat the entire time, you should skip dosing that day. (I'm going to have to figure out his dosing schedule that week and see what entails being outside in heat all day. Some days we'll be driving in the car for several hours so that should be fine. What about if we are outside but by a breezy beach? What about if we are outside but ziplining through trees? I think I'm going to have her give us an exact schedule as to how to do it.)

3. So after graduation I can really take him into an ice-cream store and let him order something as long as it's not specifically peanut butter flavored?
Yep.
I really don't have to worry about cross contamination from a topping or the ice-cream scoop?
Nope. 
But I can't go to restaurants until the 24 peanut challenge, right?
You CAN go to restaurants as soon as he graduates. I wouldn't order a Chinese dish cooked in peanut oil until after the 24 peanut challenge, but you can definitely go to restaurants once he graduates at 12 peanuts!

Holy crap. Are we seriously just two weeks away from all of that?

Meanwhile we are also trying to figure out winter vacation and are seriously considering flying with a different airline than we have been until now because it is so much cheaper.
Am I really okay with that? I don't know.
Perhaps.
But I still think I'm going to indicate 'peanut allergy' on his boarding pass, after all he will still be allergic--- but I cannot believe we really may be venturing away from our trusted and loved Jet-blue.
It's going to be really strange navigating a whole new life.

I cannot believe how close we are. 
It doesn't feel real.

If all goes well, next week is double digits.... and the following week----GRADUATION DAY. I cannot wrap my mind around that. Is this really happening?

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