Mini experiment completed... and failed

Well for the last several days we had switched Coby's zyrtec dose to the morning to ensure it would be in full effect come dosing time...
We had HOPED this would be the magic button to make it all fall into place...

...but it doesn't seem like that's in the stars.

We THINK we may notice a little bit less skin itching after dosing but we're not sure. His rash is finally almost cleared up from two weeks ago which the doctor thinks was due to the antibiotics more than the dosing so who knows- that could have happened anyway.

But the 'wet lips', 'itchy mouth', 'stuffy nose' and 'itchy eyes' are still going at full force :(.

It's actually a bit weird because every once in a while we notice him wiping at his lips hours BEFORE dosing. We went bowling today. Since it was icky and cold outside and we had parent teachers conferences at noon and we needed to be home mid afternoon for dosing- that was the perfect activity to fit in between without being stuck at home all day.

Happy boy after scoring a spare!

And at the bowling alley we noticed some of those same symptoms- nose rubbing and lip swiping.... but then again there are foods with peanuts at the bowling alley. Someone was eating peanut m & ms at the next lane over. Coby didn't go up to them and that shouldn't cause an airborne reaction since it's not dusty peanutty food- but who the heck knows anymore.

Today was the last day of our experiment of rearranging medicine times before 'calling it in' and realizing he would need to down-dose. We made EXTRA sure to squirt his dose all the way back to this throat without his lips touching the syringe at all- so we would know if he has 'wet mouth' or itchy lips it would NOT be due to a contact reaction.

"I can't drink anymore water." 

We had Coby drink the full cup of water afterwards which is also supposed to help, and he wasn't happy about drinking all that water. But he managed.

And then same ol' same ol' began. Same bleep different day. He lay on the couch for the first hour with me watching him. 

...and the first 15-20 minutes I allowed myself to hope... but then it began. Again. 

20 minutes in- one rub of the nose and one scratch of the knee.

'okay... maybe it'll stop there' I allowed myself to hope.

25 minutes in- four wipes of the mouth

28 minutes in- a little bit itching of his skin

40 minutes in- his right eye began itching and he rubbed it four times

itchy eye

one of his many lip 'swipes'

 50 minutes in- "my nose feels stuffy" and 3 nose swipes

And by the time the full hour is over- he had wiped at his lips claiming either "they are so wet" or "they are itchy" 49 times. (he also began chewing on his lips to help relieve the itch at times)

(On day one at the doctor's office every 15 minutes they gave Coby another dose. THOUGH because he was so sensitive unlike most people- instead of 'updosing' every 15 minutes, they gave him the same dose as before 15 minutes later--- meaning each updose only happened 30 minutes in...

Other children are known to start having symptoms 5 minutes after the dose... Coby never does- his starts anywhere from 20 minutes to almost a full hour in. So I am now wondering if it's possible that Coby has delayed responses- so when the doctor thought it was okay enough to proceed on day one- his body was still going to have a negative response to several doses earlier.... ???? This is so confusing! But if my hypothesis is correct that would mean his original take home dose should have been several doses earlier)

Some of these symptoms such as the swiping of the lips continues into the second hour but I'm not taking such detailed notes anymore...

So it seems as if our experiment has failed.

So tomorrow we are calling the doctor. Again. To let him know this dose hasn't been working either. And Yitz will be bringing the cooler into his office so he can pick up the next downdose mixture from the doctor's office on his way home from work tomorrow.

I just hope something clicks and soon. I hope if the doctor does agree we need to downdose- that Coby quickly acclimates to THAT dose (which would be 1/25,000 of a peanut--- FOUR TIMES SMALLER THAN HIS TAKE HOME DOSE) so we can start finally climbing UP The ladder instead of constantly going down. The road ahead looks endless- but please G-d let it work....

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