Monday, November 7, 2016

ONE WEEK DONE!!!!

Well I was told this journey at times can be two steps forward and one step back and when we started I got worried about what would happen months down the road if/when Coby were to develop a fever. Never in a million years did I expect that fever to come just a couple of days into OIT. "Two steps forward one step back indeed!"

I had to keep telling myself we are still on the road- we didn't fall off it. Slow and steady wins the race & it's okay.

The doctor had Coby go on a half dose of his normal dose (bringing it from 1/6000 a peanut to 1/12000) for three days. Each time I did it was followed by even more intense 'watching'. Some doctors wouldn't even have the child dose at all with any fever, let alone a fever as high as 104! Our doctor wanted to try dosing Coby so he wouldn't fall back to negative square one.
Square one did not mean, 'oh so he'll lose three days- so what,' it would mean he would have to repeat the entire day one and whose to say his little body wouldn't have started having a more negative reaction earlier in the day- we may have lost weeks!

So we would antibiotic Coby- wait an hour and a half before allowing him to have his loved yogurt (3 times a day is what he likes)- and making sure to use the probiotic at least an hour and a half away from antibiotics and yogurt. Coby did seem to react a bit more to the lower dose (I assume because of the fever)- being more itchy, rubbing at his eye and saying 'my nose is all boogery now,' but it could have been much worse. I was soooo nervous of a big reaction that I even hid his epipen in the very same room we were to be in because I was afraid I'd need to use it and didn't want to waste the 10 seconds running upstairs. Thank goodness it didn't come to that.

 After 3 days and his fever being gone the doctor said it's okay to put him back on his 'regular dose'- and of course again I was a nervous wreck thinking, 'what if he reacts to this dose since we just DOUBLED it back to his original.' Coby did seem again to be a bit more itchy but handled it okay. I would try to find the balance of watching him out of the corner of my eye but tried to be a bit discrete so he wouldn't develop a complex. Of course I also reminded him about one of his favorite songs on his allergy CD: "Never keep a reaction a secret!"
We called back into the allergist today and he said as long as Coby is dealing with his regular dose okay we can still come in this Thursday for his updose (which would be the 1/3000 that he was reacting quite a bit more to at the office last Monday). I have a couple of days to see if he is okay and ready for it. I am not sure if 'some itching' means he's ready or if the doctor wants zero side effects before continuing. Yep, another call to the doctor is needed. He's gonna be our new bestie!

Coby was excited to go back to school today and as soon as he got in we gave him his zyrtec followed by the probiotic, followed by a banana (a banana or bread before dosing helps the stomach- with applesauce following the dosing). I then gave him five minutes to "EXERCISE"- GO CUCKOO! GET OUT ALL THAT ENERGY!
Coby going cuckoo with 'exercising'!

And with just 10 minutes left to today's dose and I cannot believe we finished our very first week of OIT! I am so proud of us! We don't know what the future holds or how bumpy this road may get at times, but it got pretty bumpy in the first week, and we did okay! (mostly lol). 

In the meantime- WEEK ONE DONE! YAY US!!!!  








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