just an update

I don't have anything new to really say- just some more confusion. As luck would have it, it now seems that Coby is catching a cold. His nose is stuffy and he's snoring as he sleeps. There's a whole 'machloket' about whether you can dose during a cold or if you have to down-dose some more.

We actually were planning on calling our doctor tomorrow anyway because we already were thinking that he needs to be downdosed some more. We decided to give it one more go this evening and try to do everything 100% right.

I actually noticed BEFORE dosing today, that Coby scratched at his body a couple of times and was swiping at his nose too- and this was BEFORE the dose! (Of course by night time now I recognize the nose swipe as a developing cold.)

I know that doesn't really explain why he was scratching at his skin before dosing other than maybe it being still related to the rash or eczema.

Coby has had bouts of eczema ever since he was a tiny baby (which was our first hint to the allergy) and it is never 100% clear anyway. (But it's always tucked away behind his knees or on his upper arms so it's never evident in any pictures and he always looks like his cute little happy self!)

This evening Yitz also made sure to cover him in cerave after his bath (which was timed to be three hours after his dose as it needs to be) to try to get his skin under control. His rash mostly faded though there are still many dots all over. Since our allergist said he believes it is more due to the antibiotic Coby was on for strep than the peanuts we called our pediatrician to mark Coby's file that he shouldn't be given this antibiotic again.

So Cobes came home from school and "zyrtecked" right away. Unlike other times when I would only give him a carb or a banana 15 minutes later- I had him eat whatever he wanted right after having his zyrtec. He had a yogurt. He had a plate of noodle salad. He had an entire piece of challah. 

When I dosed him- I then proceeded to clean his face and lips with water and we made sure they were completely dry. (I was told a 'contact' reaction of itchiness at the spot the solution touched- like lips and throat is normal and should go away in minutes but I wanted to try to keep that from happening at least on his lips.)

He drank a huge cup of water after dosing (instead of just a bit) and ate an entire cup of applesauce and a piece of apple.

I had it covered. But sure enough same ol' same ol'. Several swipes of his mouth because "it feels wet!" (which he NEVER does other than in the 90 minutes after dosing). And scratching at his arms and belly and legs and back. And lots of nose swiping.

As usual not once does he complain- it's just what I noticed from observing him. Again.

So we had planned on calling the doctor about possibly down dosing even more. (sigh) And this was before we recognized Coby had a cold coming in. (I hope- it's just a cold and not a delayed reaction) When he went to bed he sounded so stuffed and when I checked on him he was snoring.

I know 'tis the season of colds. But colds complicate OIT. ARGH. I feel all lost without a road-map (not that I know how to read a map anyway ;). 

So here we are 16 days in. Already dealt with high fever and strep with a 3 day downdose. Already missed two updose opportunities (if all had gone well). On day 2 of another downdose. Now developing a cold and calling about downdosing even more.

I'm reading about people who graduated and who are so much further down the road than I am and it gives me hope. They help light the way. Though all those questions about the future remain. Someone sailed through the liquid stage (which Coby is on now) all the way to 100mg. (To put it in perspective- Coby is currently still having symptoms to his dose of .025mg (SO ABOVE MENTIONED 100MG IS 4,000 TIMES WHAT COBY IS ON NOW) and just entered the 'peanut flour' stage. The doctor gave her the same amount (100mg) but in flour form and the child had a horrible reaction. And I am reading how it's actually quite common to react when the form is switched- even if it's the same amount of peanut. That is terrifying.

Yet that is 4,000 times away from where Coby is now.... and if we are downdosing some more then that would be over 8,000 times away.

So anyway, yeah. Downdosed yesterday to 1/12,000 but same ol' same ol'. And now he's developing a cold which complicates things even further. Hope the doctor can give us some more guidance come tomorrow.

F you peanut!