OpportunITy

OIT may officially stand for oral immunotherapy, but we are also choosing to see it as standing for OpportunITy.

"Some want it to happen. Some wish for it to happen. Some make it happen."

Coby is making it happen day after day after day. He remains optimistic and upbeat and is not letting the fear stop him. He keeps going and going.

And how could he not?

The odds of OIT working are quite high -as high as 90%!
Though numbers don't always work in our favor....

On that day one Coby was not one of those who fell in the 95% of patients who make it to 3mg. In fact 3mg is SIXTY TIMES the amount of what Coby made it to back on day one.
Month one was a bit of a roller-coaster.
But he continued with it, did not give up and now he is about ready to updose to 250mg; an amount more than 80 times what those 95% of people get to on day one---- which is about 5000 times what Coby got to on his day one! Yowzers!!!!

My boy is grabbing this OpportunITy and making it happen.

And yes it continues to remain a theme in his weekly spelling sentences. These week's include:

Thankfully this week dosing went by relatively smoothly.
I got all the capsules open pretty easily---- only cracked one, and not even so bad!

I did get a little nervous when Coby came home from school the other day with some type of hives/rashy thing on his face. We sent pictures to our allergist. She said it is either his eczema acting up or his sensitive skin reacting to something or I don't even know. But as long as it didn't itch or begin to spread and wasn't related to dosing it's okay. Thankfully it did none of those things and a day later it had mostly faded away.

It is a bit frustrating though because I was just hoping we could get past these random 'out of nowhere things' by now, though truthfully I don't know if we'll ever be completely past it.  Sigh. I'm just glad I noticed it BEFORE he dosed that day, or I would have been in a panic thinking he was reacting to his dose.

But anyway---the OMG moment of this week----- 

WE FREAKIN' ORDERED PEANUTS!!!!!!

I literally had that computer screen open for DAYS before I was able to bring myself to push the 'purchase' button. My heart was pounding and I had to keep walking away from the computer to 'just breathe'.  When Coby saw what was on the screen he actually said, "WHAT. IS. THAT?" When I told him it was peanuts, (though obviously he knew that since the kid could read), he audibly gasped and started making punching motions at the screen. 

When I asked him why he was doing that, he said, "I don't like peanuts."

"But you will have to eat them soon."

"I know and I'm upset about that."

"Why are you upset about that--- I thought you were excited? I'm confused."

"I'm also confused."

Awwww my sweet brave little boy. As excited as he is to 'keep going'- he must be terrified at the idea of eating the actual peanut (in peanut form). After all, the last time he did, it nearly killed him, and now here we are just days away from asking him to do it again. That is terrifying.

But Coby knows what he is fighting for and he aint giving up. We decided that we are in this together and to therefore order the peanuts together and so together we pushed the button on the mouse.

literally the order is happening RIGHT HERE at the push of this button!!!

And now his poison is on its way to our house. It will probably get here tomorrow.

It is soooooo weird that we have to feed him the very thing that can kill him, in order to save him.

Tomorrow we updose from 175 to 250. Next week (IYH) 250 to 500. And the week after that.... 

Breathe in

breathe out

It's going to get really extremely real.

breathe in

breathe out

15 days (hopefully) and counting....

breathe in

breathe out