Coby still cannot kick his cold and he even had a low grade temperature earlier in the week.
I learned that during OIT the body is using so much of its energy fighting its 'enemy' so it is difficult for it to fight other things as well. They are more susceptible to get sick and to have those lingering colds. (And then that sickness/lingering colds can make a reaction more likely because the body is fighting off too many things and at times something gives---- it's a vicious cycle.)
A few days ago Coby went to bed in his heavy flannel pjs and socks wrapped in a blanket and his room was pretty warm. When he woke up his legs felt warm and I thought, 'oh crap!' Thermometer showed 100.3 and he insisted, "I am perfectly fine mom!" I was wondering if maybe he got overheated during the night wrapped up in all those layers. He was acting perfectly fine (other than his cold) but still I was already figuring, 'great he's going to get sick, his temperature is going to climb and we will all miss several days of work and school... dr will make him downdose and then no way are we making it in this Thursday... Yep, my mind was circling that drain.
That afternoon (with no meds in him) his 'temp' was 99.1 meaning we didn't even have to call the doctor about dosing! We already know that anything under 100 is okay(ish) to dose (just watch extra carefully)!
And that was it as far as his 'fever' was concerned!!!!
Nothing else!
It had completely disappeared! How lucky were we!!!! Dodged a bullet there!
But of course--- he still had that cold. Mostly in his nose. A couple of coughs after dosing one evening. A random cough another day. His nose was the biggest culprit and we ended up doubling his flonaze (as per dr instructions) last night to help him breathe.
We weren't 100% confident we'd be able to go in today to updose since many doctors do not updose a child with a cold while others do as long as the lungs are clear and there is no fever. Coby went to bed hopeful that he'd be able to updose today.
I went to bed and was unable to sleep. Apparently insomnia has become my Wednesday night tradition (which I hope I can break)- me being a ball of anxiety worrying about everything under the sun. Will they tell us to come in? Will we go in only to be sent home? Can he updose? If he does, will he react? How the heck am I going to get there on time now that his school started dismissing ten minutes later than they used to and as it was I was only making it in at exactly our appointment time. What if I never fall asleep? How will I drive safely? Will I get lost again? What if the weather is bad? Tick tock tick tock tick tock through the night.
But a few hours of sleep and a whole load of caffeine and I was ready to face the day--- well sorta.
A random unpredicted snowstorm?!!!! And it's sticking?! Are you friggin' kidding me?! No way am I going to drive up there in this weather! ARGH!!!! G-d has a sick sense of humor. Fortunately it was a quick passing storm and I felt my blood pressure resume to its normal level.
The doctor told us to yes come on in today and they will assess Coby.
But by this afternoon as I awaited Coby's carpool arrival I was nearly having a full blown panic attack knowing there was no way in hell we'd get to Suffern in time and the doctor already had given us the latest possible appointment time as it is.
I did many laps around and around my first floor as I waited for him.
When he got home I'm sure we were quite the sight- him running in and ripping off his coat and boots to run to the bathroom and pee- me pulling off his uniform and pulling his other shirt on over his head. He washing his hands as I'm tugging up his jeans. Throwing on our coat and boots and grabbing all our gear and running to the car. Him speed eating through a bagel as I'm begging Waze and my phone battery not to crap out on me! You see, being late is one of my biggest hang ups. It makes me crazy. I am always rushing everyone out of the house- getting to a show or movie a half hour early. The possibility of being even a minute late stresses me out to the max. Other than the health and well-being of my children it is probably my biggest stressor.
Yet somehow we arrived just two minutes late! Even though it was still 'late' it was so much better than I thought it would have been. The traffic gods must have been smiling down on us today.
We parked the car and I was about to rush us across the huge lot and through the building and down the steps (because who has time to wait for the elevator) but I had to keep reminding myself and Coby, 'no more exercise- you are about to updose. Let's just walk in regularly. It's okay!'
Haha- that just reminded me of something that happened earlier this week. Yitz asked Coby, 'do you want to dance?' and he said, "Dad- I can't! I'm about to dose!!!" WTG Cobes! When we were discussing getting together with cousins over Chanukah , he was asking for it NOT to be near dosing time, "Because I wanna get WILD with them!" LOL.
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| Getting checked out pre-dosing and hoping for the green light |
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| Doubling his dose! |
So they called him into the room and did all the regular stuff: checking peak flow, pulse, blood oxygen, listening to his lungs, looking in his nose. Nose was stuffy- but lungs were clear. And the verdict was in: "I am 100% comfortable updosing him today as long as you are comfortable with that." (and again lol: Coby just read the last sentence over my shoulder and corrected my grammar and had me delete a word. Too cute!)
We were soooo excited we were given the green light but since he was so congested I brought along the flonaze and the dr. agreed to give him an extra dose of that before giving him his peanut dose to help clear the path. (If a child is congested before dosing it can be very hard to tell what is from the cold and what could be a reaction from the dose.)
AND HE DID FANTASTIC!!!!!
...and a new week begins! Praying for a boring one! If all goes well---- next week we'll be doubling up once again and actually hit the milligrams stage! (1,000 micrograms equals 1 milligram).
Three more updoses and he will (IY"H) finally be past 'day one'. (Kids who get through the entire day of the original day one go home with a 5 milligram dose. We are now 45 days past that day one with still three more updoses to finish that 'day' up. But hey, we are moving in the right direction. And slow and steady wins the race!!!!
Oh---- and in case anyone is interested I did NOT get lost a single time today!!!!! Progress ;).
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