Small (white) bump(s) on the road????

Since Coby's last updose 3 days ago he had been doing pretty good. Standard stuff- those lip swipes and that stuffy nose he can't kick. But today we may have hit a little snag.

Today was (mostly) all about Chanukah!

This morning Yitz took Coby to Home Depot for the chabad menorah workshop while I stayed home working on Purim costumes. (Yes, I know....) They even had treats for the kids- gelt and sufganiyot.... too bad neither one was safe for our Coby--- maybe next year--- OIT dreaming!




When he got home I got in the proper holiday mentality and we made Chanukah cookies together. He loved every part of it- rolling out the dough- getting flour all over our clothes and faces and kitchen, cutting out the shapes and decorating it. (And yes, he got to have a little taste test as well!)

Since his school was having a Chanukah party today we had to shift his scheduling around- from bath time to dosing time. We actually pushed off his dosing time by nearly two hours. We didn't want to risk dosing him and having him dance at the party bringing on a big reaction so instead we pushed off the dose (while it is best to stick to the same time our doctor said as long as it's within 2 hours it's okay.) 

enjoying pizza and listening to Chanukah music before the entertainment began

As soon as Coby arrived home and assured me his belly was full we dosed him... and watched him. He seemed to be having slightly more difficulty than usual. Yes stuffy nose, yes lip swipes, an occasional eye rub and lots of itching. When I examined him there were no hives (pheeeew) but there were lots of scratch marks on him and a bunch of tiny white bumps.

one of the spots on his body with little white dots

He also said he felt very tired which I learned can be a reaction to a dose as well and you can't let them sleep. But then again, he also had a full day so perhaps he was tired from that, who knows? It's also possible that he was a bit itchier today but maybe those dots are always there??? He does have sensitive skin so maybe I only took more notice of these dots because of his scratching? Last time Coby had a type of rash the doctors believed it to be related to the strep and not the dosing. As far as I know Coby isn't sick though, so what is this about? Could it be that it was 25 hours and 40 minutes since the last dose instead of the usual 24? Or maybe it is all just coincidence.

Yes, obviously we will call the doctor tomorrow and we'll be watching him a bit closer tonight.

One way or another though, somebody's gotta get to Suffern this Thursday because we noticed on his dosing jar that it says, "expires December 27th" so we need a new supply by this weekend anyway. Hopefully all is okay and dosing will go back to being 'boring' and we will be able to updose this Thursday. Otherwise Yitz will be making a detour on his way home from work on Thursday. (but as I'm typing this I'm realizing then that Yitz would have to leave work real early to be home with the new supply for a normal enough dosing time--- aaaack!)

Okay. Breathe. 

Actually surprisingly I'm pretty chill about this. I am not freaking out. And my pulse and blood pressure seem to be remaining at a relatively stable level. Haha- maybe as they check the vitals of the kid every 20 minutes, they need to be checking the vitals of the mom 24/7.

'tis okay. This too shall pass- with this hopefully just being a little 'blip' and nothing more.

49 days in and counting...